Epic Journeys Epic problems we are not a luggage rack

So we finally landed in first class, did joes meds and set up the space around him food and kit bag in reach, feed pump still running at floor level, joe sat in his special needs buggy in the wheelchair space. All was good and dandy till we got to Birmingham. When a gentleman borded with a large suitcase, looked at the space, which said wheelchair luggage at the other end, looked at Joe looked at us then out his bag next to joes elbow and refused to move it. It meant we struggled to accsess joes feed for the remainder of the trip.......I still fail to get why when there were three luggage racks the suitcase had to go in a disabled space.

We had a good appointment and thankfully an uneventful journey home from Newcastle.also thumbs up to newcastle metro it's really easy with a wheelchair!

Epic journeys epic problems

Cat sitter has moved in to cat sit check
Pump full charged check
Meds packed check
Flushes packed check
Train booked check
Hotel book check

So we thought we were ready to roll!
We arrived at Bristol temple meads in lots of time, we asked which end we were in, as the train can be formed I'm different ways. Due to some confusion we were put in standard class, we had been allocated first class seat so we had companion seats and because standard class was booked from Cheltenham. When we realised we had just been ramped into the wrong carriage Sarah went off to find the guard. We had already been told by the steward we would be moved at parkway. But that didn't happen as the guard wanted to see our tickets and reservations but didn't get to us till just before the train pulled out of parkway. We were finally moved at Cheltenham after standing for 35 mins.....

Hello There!

Hello there! Let me introduce ourselves, this blog is mainly about Joe! He is 7 has Barth Syndrome and a donor heart, he is also life limited and a part time wheelchair user. His big sister H who is 12 and loves singing and drama and his two mums I'm R and I childmind as well as homeschooling both kids and S who works with animals this is how we navigate life with the curve balls Joe throws at us!