Hello there! Let me introduce ourselves, this blog is mainly about Joe! He is 7 has Barth Syndrome and a donor heart, he is also life limited and a part time wheelchair user. His big sister H who is 12 and loves singing and drama and his two mums I'm R and I childmind as well as homeschooling both kids and S who works with animals this is how we navigate life with the curve balls Joe throws at us!
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